Little Holly needs heart services to stay in Belfast
Published: 23 Sep 2012 12:41
Three-year-old Holly, who will celebrate her fourth birthday on New Year's Eve, was diagnosed in Belfast's Royal Victoria Hospital for Sick Children in March with Partial Atrial (VSD). She also has left AV valve dysfunction with regurgitation and mild right AV valve regurgitation.
According to her mother, the little girl, whose condition is a hole in her heart, a left valve defect and mild right valve defect, is waiting to be called for open heart surgery at Clark Clinic at the RVH, Belfast.
Elizabeth recalls the shock of hearing the news about Holly, who attends nursery school in Tempo, and now she is concerned about the future of Clark Clinic's services, where her daughter will be treated.
"I do not feel we should let the best in the world leave Northern Ireland," believes Elizabeth, who points out that Holly will need further surgery in the future and she would rather that she had it in the Province. Being away from home, she felt would prove isolating not only for Holly, but for herself and Andrew particularly if they couldn't be visited and supported by family and friends.
Elizabeth, Andrew and their families plan to attend a public meeting at Fermanagh Lakeland Forum, Enniskillen, at 7pm next Tuesday evening, September 25 as they want to express support for the Clark Clinic and "retaining surgery in Northern Ireland". The Clabby mother added that they would not want to lose such a vital local service for their children.
Following the diagnosis in March, she said they felt so grateful that they had this facility close to home and she wants to fight for its retention for anyone coming after them.
Elizabeth says she has written to politicians and has put up posters advertising Tuesday's public meeting in Enniskillen.
The Children's Heartbeat Trust, as part of the 'Hands Up' campaign, has organised public meetings throughout Northern Ireland "so that all the parents, families and interested parties can share their experiences and needs, highlighting exactly why saving children's heart surgery is so important to our families across the province."
The poster highlighting Tuesday's meeting notes: "A report has found that Children's Heart Surgery in Northern Ireland is safe but not sustainable. This means that over 140 families would have to travel hundreds of miles to another centre in the UK to receive surgery and treatment. We demand a local service for sick children in Northern Ireland. Protect and enhance children's heart services."
Get more stories from our Roundup section
6 Mar 2014 21:20 • Rodney Edwards
Firefighters are dealing with a blaze in Donagh tonight (Thursday).
6 Mar 2014 21:00 • Julie Kenwell
DIRECTOR of this year’s Enniskillen Drama Festival says he fears for the future of the event on the eve of its opening night.
6 Mar 2014 19:00 • Rodney Edwards
Spake: “There must be a funeral... there are cones out.”
6 Mar 2014 19:00 • Julie Kenwell
MENTION the term domestic abuse and often the stereotype that comes to mind is a struggle between a male and female in their home.
6 Mar 2014 18:00 • Editorial Department
An armed robber been jailed for three-and-a-half years for holding up the Halifax Bank in Enniskillen using a machete.
6 Mar 2014 17:00 • Rodney Edwards
DUP Councillor Bert Johnston cried “I paid the price” during a lively Council debate on Monday night after a Sinn Fein councillor claimed he had been involved in a fracas many years a go in which “somebody got a kick in the ass.”
6 Mar 2014 16:00 • Editorial Department
FERMANAGH District Council has rejected a proposal by one of its councillors who suggested that it helps Erne Rovers acquire a football pitch.
6 Mar 2014 15:30 • Rodney Edwards
AT least three people in Fermanagh regarded as ‘on-the-run’ have received a so-called secret letter from the Northern Ireland Office, it has been claimed.
6 Mar 2014 15:30 • Editorial Department
The on-the-runs (OTR) issue ought to have been relatively straightforward.
6 Mar 2014 15:30 • Rodney Edwards
A prospective UUP Council candidate has defended himself after he called Sinn Fein MLA Gerry Kelly “scum” and a “tramp” on Facebook.
6 Mar 2014 15:05
Enniskillen Olympic triathlete Gavin Noble is to take a step back from ITU Racing this season as he pursues a career with Specialized Bikes, the Enniskillen man taking up the position of Global Sports Marketing Manager for Triathlon for Specialized.
6 Mar 2014 14:00 • Rodney Edwards
TEMPERS flared in the Council Chamber this week over a proposal to erect commemorative signs at commonwealth war graves in Breandrum Cemetery in Enniskillen.
6 Mar 2014 14:00 • Mark Conway
Century TV, for whom former Impartial Reporter journalist Graham Little runs the Northern Ireland operation, will be the host broadcaster for the world famous Giro D’Italia which comes to Northern Ireland in May.
6 Mar 2014 13:00 • Editorial Department
Ashley Robinson has had an incredible 18 months.
6 Mar 2014 13:00 • Chris Donegan
A 52-year-old lorry driver who lost both legs in an accident at his home attacked three female nurses while he was a patient at the South West Acute Hospital in Enniskillen.
6 Mar 2014 13:00 • Meadhbh Monahan
A family is mourning the loss of “an old school gentleman” after he died from carbon monoxide poisoning at his Ballinamallard home on Friday night.
6 Mar 2014 10:00 • Editorial Department
Katie’s locks cut for charity: Schoolgirl’s gesture raises over £900
6 Mar 2014 09:30 • Rodney Edwards
A digger has caused damage to a filling station in Blacklion, Co. Cavan.
6 Mar 2014 09:19
Police in Fermanagh are investigating a report of arson at premises on Ballyconnell Road, Derrylin, close to the Quinn group of companies.