Little Holly needs heart services to stay in Belfast

Published: 23 Sep 2012 12:41

When Fermanagh couple Elizabeth and Andrew Breen, from Clabby, learned earlier this year that their only daughter had a congenital heart condition, it came as a tremendous shock to them.

Holly Breen joined her father Andrew as they shared in the excitement surrounding Clogher Valley's League win in Limavady.

Three-year-old Holly, who will celebrate her fourth birthday on New Year's Eve, was diagnosed in Belfast's Royal Victoria Hospital for Sick Children in March with Partial Atrial (VSD). She also has left AV valve dysfunction with regurgitation and mild right AV valve regurgitation.

According to her mother, the little girl, whose condition is a hole in her heart, a left valve defect and mild right valve defect, is waiting to be called for open heart surgery at Clark Clinic at the RVH, Belfast.

Elizabeth recalls the shock of hearing the news about Holly, who attends nursery school in Tempo, and now she is concerned about the future of Clark Clinic's services, where her daughter will be treated.

"I do not feel we should let the best in the world leave Northern Ireland," believes Elizabeth, who points out that Holly will need further surgery in the future and she would rather that she had it in the Province. Being away from home, she felt would prove isolating not only for Holly, but for herself and Andrew particularly if they couldn't be visited and supported by family and friends.

Elizabeth, Andrew and their families plan to attend a public meeting at Fermanagh Lakeland Forum, Enniskillen, at 7pm next Tuesday evening, September 25 as they want to express support for the Clark Clinic and "retaining surgery in Northern Ireland". The Clabby mother added that they would not want to lose such a vital local service for their children.

Following the diagnosis in March, she said they felt so grateful that they had this facility close to home and she wants to fight for its retention for anyone coming after them.

Elizabeth says she has written to politicians and has put up posters advertising Tuesday's public meeting in Enniskillen.

The Children's Heartbeat Trust, as part of the 'Hands Up' campaign, has organised public meetings throughout Northern Ireland "so that all the parents, families and interested parties can share their experiences and needs, highlighting exactly why saving children's heart surgery is so important to our families across the province."

The poster highlighting Tuesday's meeting notes: "A report has found that Children's Heart Surgery in Northern Ireland is safe but not sustainable. This means that over 140 families would have to travel hundreds of miles to another centre in the UK to receive surgery and treatment. We demand a local service for sick children in Northern Ireland. Protect and enhance children's heart services."

Jump to first paragraph.

Get more stories from our Roundup section

15 Apr 2014 22:00

Man took wife's car without permission

A 35-year-old man has been fined £425 and banned from driving for three months after he took his wife’s car without her permission.


15 Apr 2014 19:00

Police asking for your help with road safety through social media

Police in Fermanagh and other parts of F District are asking everyone who uses the roads to promote safety messages through social media over the next three Bank Holiday Mondays.


15 Apr 2014 15:00 • Editorial Department

Opinion - Kylie Noble - Can’t stand the rain? Thank heavens for our water supply

In Fermanagh I don’t think there is anything that causes so much anger and frustration than the weather; specifically the abundance of rain.

Social: Comments0 comments

15 Apr 2014 13:00

Hospital detention order against mentally ill man on attempted murder charge

A mentally ill man who bludgeoned his elderly uncle over the head with a hammer until he thought he was dead has been committed to hospital indefinitely.


15 Apr 2014 11:30

Don't forget to recycle your Easter egg packaging

Enjoying your chocolate egg but don't know what to do with the packaging?


15 Apr 2014 09:00

Homes evacuated in security alert in Fintona

POLICE are dealing with a security alert in Fintona, County Tyrone, after an incident in the early hours of this morning (Tuesday).


14 Apr 2014 22:00

Businessman failed to demolish apartments

A 44-year-old businessman has been fined £500 for failing to knock down a block of apartments that pose a danger to drivers.


14 Apr 2014 19:00

Council reminder to householders about risk of carbon monoxide poisoning

Fermanagh District Council is encouraging householders to have their heating appliances, which have been well used over the winter, serviced and chimneys cleaned to reduce the risk of carbon monoxide poisoning in the home.


14 Apr 2014 16:00

Sentence deferred for six months against disorderly man

A 28-year-old man involved in a fight outside a pub claimed remarks had been made about his former partner.


14 Apr 2014 13:00 • Meadhbh Monahan

Tourism businesses work harder to get visitors off the beaten track

Fermanagh tourism providers have to “work harder” because the county is “not the first choice destination.”

Social: Comments0 comments

14 Apr 2014 11:00 • Brian Donaldson

Sam uncovers broken hearted grandmother’s letter after son’s Great War death

The mother of a soldier serving in the First World War, had to resort to writing for financial help after her son died as result of the appalling conditions right at the end of the War in November 1918.

Social: Comments0 comments

14 Apr 2014 09:30 • Lily Dane

The positive attitude of the bride who developed same cancer as her brother

An inspirational young Fermanagh woman, Rachel Wilson (formerly Byers) was only married a matter of months when she was diagnosed with Hodgkin’s Lymphoma.

Social: Comments0 comments

14 Apr 2014 08:21

Single mother stole from employer of over 11 years

A 28-year-old single mother who betrayed the trust of her employer of over 11 years by stealing from his shop has been given 200 hours of community service.


13 Apr 2014 16:00 • Editorial Department

Local players share the Bridge Congress spoils

When the competition hotted up at the 37th Annual Fermanagh Bridge Congress over the weekend, bridge playing talents from the county demonstrated they ‘can hold their own.’

Social: Comments0 comments

13 Apr 2014 14:00 • Editorial Department

Restaurants celebrated at Awards

THE Watermill Lodge Restaurant, Lisnaskea scooped an awards treble at the Ulster Regional Finals of the Irish Restaurant Awards this week.

Social: Comments0 comments

13 Apr 2014 12:30 • Editorial Department

Schools keep Marie Curie blooming

Marie Curie’s Great Daffodil Appeal was this year supported by over 12 local primary schools in the Clogher and Fermanagh areas.

Social: Comments0 comments

13 Apr 2014 10:00 • Julie Kenwell

The hands of historic clock move once more

AN important part of Fivemiletown’s past has secured a place in the village’s future thanks to funding from the Heritage Lottery Fund.

Social: Comments0 comments

12 Apr 2014 18:30 • Editorial Department

Senior championship placings will add extra incentive to new league season

The new club season rolls into action this weekend and the 2014 league will have added significance for clubs with placings for the 2015 Championships based on how sides perform in the league this season.

Social: Comments0 comments

12 Apr 2014 18:30 • Editorial Department

Top five the first aim for Division Two sides

Results will matter right from the outset in SFL Division Two this year as changes in the structures in the division will see the league split at the midway stage.

Social: Comments0 comments

12 Apr 2014 18:00 • Rodney Edwards

No sudden rates increases, Assembly told

THE issue of rates in Fermanagh was discussed in the Assembly on Monday, with Sinn Fein’s Phil Flanagan describing it as “particularly worrying” for business owners.

Social: Comments0 comments