A number of Fermanagh's country music stars are using their talents to raise money for medical treatment for a little girl with a serious neuromuscular condition.

The Benn Sisters, Nathan Carter, The Tumbling Paddies, John Garrity, Anthony McBrien, and many more local artists, are joining forces with other country musicians from across the island of Ireland to create a six hour concert which will be streamed live online to raise vital funds for treatment for baby Olivia (Livie) who was has been diagnosed with a rare and serious genetic neuromuscular condition called spinal muscular atrophy (SMA) type 1.

Donations can be made via the 'A Better Life for Livie' gofundme page (https://gf.me/u/x3i9wz) which has been set up by Livie's parents Keith and Karen. Sharing details of Livie's condition, they said: "SMA is caused by a gene deletion which results in deterioration of Livie’s nerve cells connecting her brain and spinal cord to her body’s muscles. There is no cure and Livie has its most severe type. Livie’s muscles used for activities such as crawling, walking, sitting up, moving her head, and even swallowing and breathing, are becoming progressively weaker and shrinking. Without any treatment, little Livie’s condition would continue to deteriorate and it would be unlikely that she would live past her 2nd birthday. Every child with SMA is different and little Livie’s future is very uncertain."

"Treatment options for little Livie are very limited. Our best hope for a better life for Livie is a once-off gene therapy called Zolgensma, which is currently only available in USA. It costs approximately US$2,100,000. Studies have shown that Zolgensma can substantially improve quality of life. Livie's antibody test qualifies her for the treatment. We are against the clock as Zolgensma is only available to children under the age of two years," they added.

Hosted by Gary Gamble and featuring over 35 performances, the Go Live for Livie music marathon fundraiser will take place on Facebook this Saturday (June 6) from 2pm to 8pm.